Tuesday, November 1, 2011

Cystic Fibrosis and a really good hot dog!!!

If you are local you have an opportunity this weekend to help Cystic Fibrosis.

Cystic Fibrosis is a genetic condition that causes thick, sticky  mucus to build up in the lungs and digestive system. Without treatment, this condition is fatal. Luckily, there are now many wonderful treatments and medications available that allow people with CF to live healthy, normal lives.

However, the current median life expectancy is still only 37.4 years. Scientists are coming closer and closer to finding a cure for CF -- just this year an exciting new drug was submitted for FDA approval that "fixes" things at the cellular level for people with a select group of CF mutations -- but they need more help.

Here's how you can play a part...


hotdog


This Saturday, November 5th, there is a run right here in Provo. The Cystic Fibrosis Foundation is hosting "The Dawg Run," a 2.2 mile run from Provo High to J-Dawgs and back. 



Registration is at 10:30 a.m. and the run is at 11:00 a.m. 
The price is $20. Proceeds go directly to the CF Foundation to help scientists find a cure for CF.


Here's the great thing about this race: Participants will run to J-Dawgs, actually get to eat a J-Dawg, and then run back.
(This cracks me up!!! I think this is a great idea though -- think of the other venues you could do this with for fundraising. I can think of a few places I love to eat at enough that I might be willing to run there just to get to eat! Cupcake shop next time anyone?) Running and eating -- brilliant. 

All of the info above I received from my sweet friend Sarah, whose two-year-old daughter Madeline suffers from Cystic Fibrosis. Just like anyone else who deals with this on a personal level, I know she would appreciate any support you can give this event and this really good cause.

Plus, ....you get a J-Dawg!!! If you haven't had one -- you should!

Spread the word!

If you want to participate, go here for more information. If you like the idea of helping but not the idea of running, you can donate directly to the foundation on this page.


No comments: